Tuesday, September 10, 2013
Round 2 Tomorrow
My second dose of Benlysta is tomorrow morning at 8:30! Which really means I should already be in bed, but I wanted to get one blog entry in before tomorrow. I'm not nearly as nervous as I was for my first infusion, so I'm already ahead of the game. For the first few days after the last infusion I was feeling better than normal, not a lot better, but a little better is good. Then I had some different symptoms for a few days, which could have been from the Benlysta, or not, who really knows? I had a lot of leg pain one day although I did ride 12 miles on the stationary bike at the gym that day. Then I also have had quite a few headaches the past week, but only one bad one, the rest are just annoying. I slept really well at night for a few nights after the dose, but that's lessened and I'm back to tossing and turning and my shoulder is hurting again. I guess we'll see how it goes after tomorrow's dose. A lot of people on the Benlysta forum have said that their 6 month mark is really a milestone in improving their quality of life. I'm hoping it doesn't take that long, but I'm in this for the long haul! Keep praying that this will help me. :)
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