Soooo, I don't mean to sound like a broken record here but my gosh, my hip hurts! I'm not sure how I'm going to make it till my orthopedic specialist appt on the 22nd much less do all the things that need to get done between now and then. I'm sure I'll manage, but I'm pretty sure it's just getting worse. Tony told me to call the dr but I don't know which dr to call since the one who ordered the mri is the hematologist and he doesn't need to see me anymore, my primary care dr I've only met once and she probably doesn't know about the hip yet, and the people at my insurance co clinic are hospitalists so they can't do anything. Even if I did call someone, I'm not sure what I'd say anyway...'Hi, I'm in a lot of pain. Help.' Update: called to see if they could move up my appt, they said no.
I went to see the pulmonologist last week and he said 'I'd be very very scared if you had to have surgery.' So if I do need a hip replacement, he doesn't want me to go on the heparin drip (like I was in the hospital) because he thinks that might have been part of the reason my platelets kept dropping. He also wants me to get a removable blood filter in case I were to clot while I'm off the blood thinners to keep the clots from going to my heart. He also ordered an echocardiogram and a chest ct. He said that when I had the first chest ct done, it showed some other foreign objects in my lung other than the clot, but he did say that sometimes a clot can make it look like there's more junk in there than there is. So basically he wants another one to make sure nothing else is in there. Needless to say, it wasn't a very 'inspiring' appt, but I'm glad he's actually making an effort to get stuff figured out.
Nola can roll over! She went from front to back and then the next day went from back to front. Now she seems to be doing back to front a lot and gets mad when she's on her stomach for too long. Her acid reflux meds are super hard to get her to actually swallow, so I think I might call and ask for the liquid stuff. She's still spitting up as much as ever. I think I might try real baby food soon and see how that goes. Update: asked for liquid prevacid instead (after trying to scrape all the dried disolvable tablet out of her neck folds this morning).
2 comments:
Wow Leatrice. You are going through so much. I can only hope that these doctors can figure things out for you. Love ya!
I don't know how you deal so well with all this stuff you go through. I couldn't stop crying when you told me about your hip bone dying. You are such and inspiration to everyone around you. You need a break from all these medical problems. I want to see you go into remission and stay there forever. The amount of faith and hope you show going through all these things is nothing short of amazing. Love you
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