Nola is 1!!!

Wow Nola, I can't believe that you're 1 year old already! This past year has gone by SO fast and I'm so very glad that I got to spend all of it watching you grow into a speedy little toddler. I'm sorry that I had to miss a few weeks of your life at the beginning, and I know you won't remember it, but it makes me sad anyway. You'll never know how important you are to me. You're my little one. The sweet baby that helped me to see how very special every moment of life is, even the bad ones when we're cranky and just want to go to bed. You are such an amazing little girl who makes me smile even in the worst of situations. You make me so happy and I can't believe I've been given such a miraculous blessing as you. I'm privileged to be your mama and I'm so glad that I get to watch you grow up and become the person that God intended for you to be. I love you so much No-nos, my little one, you're my favorite one year old!

We had Nola's birthday party today. It went very well, but as usual, I always feel rushed during parties. I feel like everyone is just waiting for the next big event...the food, the cake, the presents. Anyhow, I LOVED the rainbow theme. Holy cow, it was great. It was a lot of work to figure out how to make all the rainbow food, but it was so pretty. I have to say, I'm never making a rainbow jello cup again, those things took like 12 hours. Nola liked her smash cake OK but I was inside cutting up the rainbow layer cake while she was eating her cake, so I'll have to watch the video to see what all happened there. She has been able to stay standing up without holding onto anything for about a week now. She does it more often everyday and I think she might actually start walking soon, probably within the month. She's such a fun girl, I love her so much!

28: A Year in Review

Last October 10 was my 27th birthday. I had no idea what we did, so I just looked back and I guess we went to a movie. I was almost 35 weeks pregnant with little Nola. October 26 we welcomed our miracle baby Nola into the world after not having an epidural for my 12 hour labor. I'm just glad it wasn't any longer than that and I'm pretty dang proud of myself for making it through!I had her at almost 6am and 5 hours later I had my mom, Embry, Tony's mom, and sis visiting me at the hospital when I got the news that I had to have a D&C because I was hemorrhaging. Not the worst thing in the world, but not too great either. I wanted to visit with my family!In November we had family over for Thanksgiving, which was GREAT, except I wasn't feeling too well. Then in December they finally figured out I had a pulmonary embolism and partially collapsed lung. They started me on blood thinners, oral and injection, and sent me on my way. On Dec 16 I went to the ER where they thought I had internal bleeding, so they admitted me.


December 21 I couldn't breath and the nurse called a code blue. They intubated me and determined that a blood clot had traveled from my leg to my heart. My heart was only working at 25% function. About 20 friends and family showed up that night to pray for me.
I missed Christmas. :( New year's was the first night I got moved out of the ICU and it was spent watching 'When Harry Met Sally', eating cheese, crackers, and sausage, and drinking sparkling apple cider. I got released on Jan 4th and finally went home. I spent 2 months doing physical therapy to strengthen my muscles enough to walk, do my hair, feed myself, etc. It was a very humbling experience.
I had my 'I'm Alive' party in March! I made up for missing the Christmas party and we celebrated the fact that I was still alive. In May we went on a horseback trail ride the day before mother's day and I got bucked off. I fractured 4 vertebrae in my lower back. I'm still suffering the consequences of that stupid horse. On my 28th birthday, we had a picnic in the park. I had my husband and two precious girls with me, it was perfect!

Since getting out of the hospital in January, I've gained 30 lbs. Made my pcp check my thyroid and lo and behold, it's low. Going to pick up some new meds now!

And the Madness Begins!

We've been busy! First we took Tony's dad out for lunch for his birthday on our way up to Phoenix on Sunday 10/2/11. We went to Famous Dave's BBQ, it was our first time there, and we liked it quite a bit. Tony's dad made the mistake of ordering a burger that was supposed to be really spicy and then putting extra hot sauce on it and making it devilishly spicy. The rest of us did not do that and we thoroughly enjoyed our meals.
Then we headed up to Phoenix to spend the night and leave the kids with Dorothea. Of course I made everyone (except Tony) stay up too late playing games, but was well worth it in my opinion. I lost, but what else is new? We also had some yummy dinner from Filibertos. I love me some egg, sausage, and cheese breakfast burrito! Below is a pic of Allison, Tony, and Alex. Alex just moved back to Phoenix from Kansas City a few weeks ago. It was really good to see him again and spend some time with him. The last time he saw Nola she was just a few weeks old.

After we got up the next morning, we headed off on the 5 hour drive to Las Vegas. It was actually a relatively pretty drive with different desert landscapes to look at along the way. When we got into the outskirts of Vegas we tried to look for the 'Sister Wives' but had no luck. ;) We met my friend Kristy and her husband John at their hotel and went to eat at the Mandalay Bay buffet although we weren't super hungry since we had been snacking the whole drive up there in order to stay awake. I was impressed with how much food we were able to pack away even so.

Tony and I went out to eat at Serendipity that night while Kristy and John had a date to see the Lion King. The food was alright and we spent a lot considering it was supposed to be a cheaper restaurant. We met up with Kristy and John the next day and went to the Freemont Street Experience (I might be wrong about what that's called) which is the old Las Vegas strip that they put a sort of covering over. Basically it was casinos (surprising right?!) and shops so we just kind of wandered around and I found a few presents for people.

Tuesday night Kristy and I went to see Le Reve while John worked at the conference and Tony hit up the casinos. It was pretty fantastic, like a cirque de soleil show, but in water. There were lots of cool stunts and pretty props, but it left me wishing I was more flexible. I'm not entirely sure it was worth $120 each, but it was pretty special none the less.
On Wednesday Kristy and John had to leave in the afternoon, so we walked around with them for a bit and grabbed a bite to eat before they left. Shortly before they left, it started to rain. Apparently all the traction on the bottom of my flip flops had worn off because I was sliding all over the strip. It was terrifying. So I stayed put in between the M&M and Coca Cola shops while I made Tony go get the car to pick me up. I'd say that was a better option than breaking my hip. We came home on Thursday, got to Jamie's house around 4pm to pick up the girls, and made the drive back to Tucson. Thanks to everyone for watching our kids, we really appreciate it!

We've been wanting to try out this new biking/jogging/horse back riding trail just south of our house (by Tony's work). So we finally went on Saturday afternoon. I took the girls in the bike trailer for the first time and they really enjoyed it, Nola even fell asleep. I was ready to give up about halfway through the trail (it's 2.6 miles) and turn around, but Tony had me go another 1/4 of the way. I survived and I have a really sore butt to prove it! I'm hoping now that it's cooling off, we'll be able to go every other day and I won't have to pay to join a gym until it get hot out again in the spring.
Then yesterday (10/9/11) we had Nola's dedication at church. Lots of our friends and family came along to support us and most of us went out to eat at Culvers afterward. We basically introduced our families, said the dedication vows, and read what we wrote on our 'homework assignment'. Here's what I wrote:

My wish for my girls is that they grow up to put their whole trust in God. I don't want them to fear the future or dwell in the past, but to realize that God's infinite wisdom and love will guide them through any hardships that come their way. I wish for them to be independent, passionate, kind, caring, and responsible. But most of all, I want them to know how much they matter - to me, to their dad, to each other, and especially to God. I want them to know that they are valuable, important, and loved wholly and unconditionally.



Oh and today is my 28th birthday!

Nola is 11 Months Old! (almost)

Nola turns 11 months old tomorrow! Eeee, that means only 1 month until her birthday! I decided to go with a rainbow theme and let me tell you, it's hard to find rainbow birthday party supplies! I'm pretty excited about making a rainbow cake and I've got until Oct 30 to get everything together, so it should be fine.

We decided to go to Las Vegas for 3 nights Oct 3-Oct 6 because my friend Kristy and her hubby John will be there for a conference. The girls will be spending 2 days with grandma Dorothea, 1 day with Aunt Allison, and 1 day with Jamie. I would have rather gone on the weekend, but we have a mandatory meeting for Nola's dedication at church on the 2nd. Then we'll be heading up to Phoenix so we will only have a 4 hour drive on Monday to get to Vegas. Have I mentioned that I LOVE Las Vegas? It would only make sense because I'm so naturally drawn to all things sparkly and shiny right?! It's practically a whole city made of glitter! :D Kristy and I are going to see Le Reve which is an acrobatic water show. I saw some of it on Regis and Kelly earlier this year and vowed that if I ever went back to Vegas, I'd be going to see that show. Our hotel is super cheap (got a good deal online) but the shows are always expensive so we're going to try to get tickets the day of and see if they're cheaper. I'm keeping my fingers crossed. It will be nice to spend some time with Tony away from the kiddos too. We've been having a bit of a rough time lately which me not feeling too well and more responsibility falling on Tony at work and at home, it's just been more stressful than normal.

I've been doing more playdates which is always fun. I find that the kids are (generally) much better behaved when we're out of the house. There's more to look at, a change of pace, and sometimes I even get to talk to adults! However, a few weeks ago I met up with a friend from young marrieds for lunch with the girls and Nola (who's normally the calm one) screamed and cried pretty much the ENTIRE time. It was maddening! I just kept apologizing and saying 'really, she's not normally like this!' I had no idea what was wrong either which is the most frustrating thing in the world. I fed her, she screamed. I held her, she screamed. I gave her toys, she screamed. Impossible.

I got certified in first aid and cpr yesterday. It makes me feel a little more confident about a) having a pool and b) having a child who chokes a lot and c) living in a region with rattle snakes and scorpions. Turns out scorpions aren't nearly as dangerous as I thought they were, which makes me feel less paranoid.

I made the girls picture appointments for Friday. I also made an appt to get my hair cut. I'm kind of nervous, but I think it needs something to make it bearable while the short hairs are growing out. This is what I'm going for:But obviously my hair is straight and I could NEVER stand having my bangs that long.

Oh I should say that Embry's hand, foot, and mouth disease is all gone. Has been for a while, but it was a bummer for her. Tony got it too, but only very very mildly and for about a day. I swear he's got the best immune system ever. Embry was quite miserable while she had it though, not fun for any of us. Nola (and I) never got it, so WOOHOO!

As far as my health goes, I started taking probiotics which I think are really helping my tummy troubles *yay*! My back is the same-ish. I've been having more headaches, blah. There is a very troubling pain in my right groin area (like the inside of my hip maybe) when I stand up or walk or sit or lay...so pretty much any change in position will get it going. Maybe I should go to the orthopedic guy again, but I'd really rather not. It could just go away on its own, but then again, maybe not. I keep telling Tony it feels like my crotch is gonna break.

A Recap

Nola turned 10 months old on Aug 26, which is just unbelievable to me! I know I was kind of out of it for a bit there, but it really seems like she can't possibly be that old yet. We finally got signed up for the next baby dedication at church, so we'll be doing that for Nola on Oct 9. That happens to be the day before my birthday, so I think it's reason enough for a party! :)

Then she'll be a year old on Oct 26, time for another party! Then 2 weeks later Embry will be 3, time for another party! I think I'm going to do a rainbow theme for Nola's and of course Dora and Diego for Embry and we'll definitely have a jumping castle for that one because Embry's been talking about it for about 4 months now. She's obsessed. I have no idea where she gets that trait from. ;)

Embry completely regressed with the potty thing a few weeks ago. It is maddening. She is now getting better again, but she was peeing in her pants (which forced us to go back to pullups ie $$$) pretty much every time she peed. Now she's doing better, which means she's had the same pull ups on since this morning without incident. She's peeing in them overnight now too though which is really disappointing because she had been dry at night for at least 6 months. Ah well, I'm sure it's just a part of toddlerhood that must be explored before moving onto the next stage. Lucky for me though she never pooed anywhere but in the potty and is now even using the big potty so we don't have to do that yucky poop transport from little potty to big potty. That can make even the strongest of stomachs turn.

We went to Phoenix over labor day weekend. It was super fun but also utterly exhausting as always. Nola woke up screaming twice the first night which was extremely stressful for me because I hadn't gone to bed till midnight (I was up playing games) and she was sleeping in a pack n play in Allison's room with Allison and Micah so I was really worried that her death cries would wake up the other baby. Anyhow, I fed her both times and she went back to sleep. The second night she was totally fine, so I'm not sure what he problem was, but she got over it pretty quick. We went to the Sea Life Aquarium in Tempe the first day and met up with Tony's mom, Allison, and Micah there. I had expected something really sucky, but it far exceeded my expectations. Embry LOVED it! She got to touch the starfish and stick her head in the tank bubbles and watch all the different sea creatures, she thought it was just great. I had fun too! Tony's brother Stefan came over that night and we had dinner. We got to see my friend Jamie while we were there and also Tony's friend from high School and her husband. Oh and we went to downtown Tempe with our friends from young marrieds who just moved up there. Embry got to play with Noah and it was just the cutest thing. :D Makes my heart happy.

MOPS started this past Tuesday. It felt so comfortable being back in that room with all the other moms that I share so much in common with. Although I have to say, cutting the time down to 2 hours really made it feel rushed for me. Maybe it was just because it was the first meeting and it won't feel rushed when there is a speaker and the regular layout, but it seemed like a lot to cram into 2 hours. We did squash books for a craft which I actually didn't do a whole lot of prep for at all, that was my partner in crafts, so woohoo! Now we have 3 crafts left for the year and I'm halfway prepped for the next one, just need to cut out some stuff on the cricut and we'll be all set. I'm also making the new baby onesies. I made about 10 to start off with, 5 for boys and 5 for girls, so I'm ahead of the game in that regard.

Where has the time gone?

I can't believe it's been almost a whole month since I last blogged, yikes! I guess I'll do bullet points so I don't have to think of transitions :)

Nola:

• she's crawling like a pro.
  
• Her favorite chew toy is any cord she can find.
  
• She's toppled one of the surround sound speakers and the tv tray over on top of herself, but she's easily soothed so neither was a big deal.
  
• She enjoys going to the recycling bin over and over again to take out dangerous objects like soda cans and plastic wrap.
  
• She has the cutest smile EVER! I just want to eat her face with those big cheekies and little baby teeth!
• We found out she hates bubble wrap being popped near her. Embry found this quite enjoyable, but Nola was very upset so the bubble wrap is currently in a 'time out' in the laundry room.
  
• She got the two front side bottom teeth about 2 weeks ago.
• She pulls up to her knees on everything, but has only pulled up to her feet 3 times that I can think of. Once on Embry's purple chair, once on the toy table, and once in her crib (which was super cute and I wish I had my camera to take a picture).
  
• Her most common 'words' are 'Ga', 'nnnnnga', 'hoyuhl' (both she and Embry made this same sound), 'eh eh eh eh eh' (like a machine gun), and 'udl udl udl udl' (like a wookie).
  
• We started giving her a sippy cup with water like a month ago and she really doesn't understand that she needs to suck on it. She just bites it and well, that's about it.
• She's started taking 2 solid naps each day. One around 9am and then another around noon. I like it A LOT.
  
• It has gotten so much easier to feed her which is a humongous blessing! We give her almost all stage 3 foods and don't have to put any of them in the food processor first. Occasionally she'll gag, but hasn't thrown up from it in about a month. She even eats yogurt with chunks in it and gnaws on french fries etc.
  
• However, she throws up 1-2 times a week. Like her whole jar of food and her whole bottle and it smells and it's really gross. She'll be all fussy and then she'll throw up and then she'll be super happy. So I'm going to have to ask the ped about that at her 1 year check up.
  

Embry:

• I love her, but she sure does know how to push my buttons!
  
• She moves at the speed of slow.
• Unless she's with her friends and then she's like a tornado.
• She hates naptime, but she still stays in her room for 2 hours/day. Sometimes she takes a nap, sometimes she plays, but either way, I sleep.
  
• She's definitely started to test her boundaries.
  

Me:

• I'm dang tired.
• The neurosurgeon said I have 2 months to decide whether to get the kyphoplasty done. He found a different bone glue that is more like bone rather than super rigid, but he'd rather not use it since it hasn't had any long term studies etc.
  
• My back has been hurting more again. It's somewhat ok when I'm up and going, but after I sit or lay down for any amount of time, it's pretty bad.
  
• The hair that fell out is now about 1-2 inches long and it's driving me nuts. I'm thinking of getting my hair cut short just so it will blend in better. That's what I did last time this happened, but I look even fatter with short hair.
  
• I am fairly certain I'll be joining a gym within the next week. I need to do something about my body, it's gross and it's affecting my mentality in a bad way. We'll see how my bones feel when I try to work out, I hope it all goes well.
  
• I was really sick last week. I hated it. I had a lupus headache (like a migraine) and pretty much couldn't move from my bed for a 16 hour period. I had a headache for 2 days before that, but not severe, then I went to take my nap and it just got horrible.
  
• My stomach has been messed up for about a month. It's like it was before I got pregnant with Embry. It sucks, but maybe it will help me lose weight?!
  

Tony's 26!

Nola being the super cutie that she is!

And we're only 1 year apart in age for a mere 2 months once again. This fact makes me feel like less of a cradle robber. ;)


Ok so I started this post about 2 weeks ago and all I got down were 2 sentences. I guess I'll finish what I started and say that Tony's birthday weekend was pretty fun. We went up to Phoenix and stayed at a resort for Saturday night. We took Embry over to play in the pools and then dropped her off at grandma Dorothea's house to spend the night with Nola. Tony and I ate dinner at Carrabbas even though we tried to eat at the Heart Attack Grill, but apparently it closed down. Sunday morning we had a breakfast buffet, went to the waterpark (I went down the slide WITHOUT getting injured, huge success), packed up and went to spend Sunday night at Tony's mom's apt. All of us: Doro, Allison, Micah, me, Tony, Embry, Nola, and Stefan went out to eat dinner at the Mellow Mushroom which is a pizza place that Tony's been wanting to try and it was dang good. Except all the kids were super cranky which was a tad stressful.

Embry at the resort water park.

Tony and Nola outside of the Mellow Mushroom

Our air conditioner broke AGAIN, this time the outside unit, and after talking to the home warranty place, they finally decided it would behoove everyone if they replaced the whole outside component. This was great news, and they also said they'd get it done within 2 days which was way better than the 30 day installation estimate they gave us at first. They replaced it on Tuesday 8/9 and in the meantime, my mom and I replaced the drywall that was cut out and the baseboards that were removed. We had a bit of snag replacing the carpet padding because it was felt and not foam (which is what they have at Lowes and Home Depot). We also cleaned the carpet and stretched it back out. We were going to have the entire downstairs tiled and had everything all set, then realized we just couldn't work that much of a cost into our budget so we put that on the back burner for a while. Hopefully we'll be able to get it done sometime in the future, but for now the carpet is going to have to suffice.

My physical therapy is completely done. I hate to be a debbie downer, but I've been feeling worse lately. My back/hips/joints in general all hurt and my intestinal problems are back (which were pretty much non-existent when I was pregnant/nursing) and my headaches are returning as well. I know I can deal with all of these things, I just can't help but think of how much more fun life would be if I didn't feel this way.

My dad has early Alzheimer's which means he asks the same question multiple times. My favorite common question is when he says to me, 'Are you getting fatter, or are you pregnant again?' This stings double fold because not only am I already painfully aware that I've gained weight (and ALL of it in my stomach) but also because there's no way I'd be pregnant since we can't have anymore kids. He asks it every time he sees me, without fail.

This brings up another point, how do you get motivated to do cardio and weight training when you're in constant pain? I'm kind of confused about the whole thing because I want to be more active, but I also think I shouldn't be pushing myself too hard. It's a double edged sword.

Anyhow, I hosted my sister Jen's baby shower yesterday. It was lots of fun and I can't wait to meet little baby Kindra soon!

Jen and I and the cake I made.

Embry and Colter had so much fun playing together!

Nola's 9 Mo Stats

at Nola's 9 mo appt

Weight: 20lbs (75%)
Height: 28.5" (>75%)
Head: 43cm (up to the 25%, woohoo!)

The Dr said her ear infection is all gone. I mentioned that she gags on EVERYTHING! I'm talking we can't give her stage 3 baby food unless it's pureed in the food processor or else she will gag and throw up all over. It's quite ridiculous. We tried giving her puffs twice and both times she gagged. The Dr said to try mashing up bananas with a fork and keep giving them to her to try and get her used to different textures or thicker foods. We'll see how that goes. I mashed up some mandarin oranges the other day and after they were in her mouth, she'd blow raspberries until it all came running down her chin. Not a success, but at least she didn't vomit!

Embry is insane. She won't stop talking about her birthday party coming up in a mere 4 MONTHS! She'll tell anyone who will listen about how she's going to have a Diego and Dora party and everyone's going to sing, 'Happy Birthday to Embry, Happy birthday to meeee!' and then she demonstrates how she will blow out her candle. She's completely potty trained but she's started this new thing where she'll just pee in her underwear enough to get them wet so then we have to give her new ones to wear. It's annoying as all get out.

We've been swimming a LOT lately. Partly because it's fun but mostly because our AC is still not working. The first time the AC guy came out (on Wed) he said he fixed it but he never actually opened up the bottom half of the AC unit in order to see the real leak. Needless to say, it was still leaking the next day and the same AC guy came out, so I showed him what was leaking and it was obvious he had no clue about it before that moment. So turns out they had to order the part and send out an install guy to determine how long it would take to fix and how many people they would need...which they didn't do till Friday. On Friday they told me they couldn't fix it till monday morning and also that the home warranty doesn't cover any reclamation or coolant disposal fees which are $400. Also, the home owners insurance tricked me and instead of paying a $1000 deductible to fix the water damage, we're signed up to pay 1% of our insured amount which is about $2300. This is a bit ridonkulous, honestly.

Good news though is that I'm probably going to lose a few pounds of water weight with all the sweating I've been doing.

Nola is 9 Months Old!

and she started crawling on Saturday night (7/23/11)!!! Of course, I wasn't here either! I had been really encouraging her to crawl the day before because she was soooo close. She'd get on all 4's and then pull both knees forward under her tummy, then fall onto her stomach and start over. She was actually going places with that method, but it looked like an awful lot of work! Then I went with My friends Sarah and Anna (Hi Anna!) to a cabin on Mt. Lemmon from Sat-Sun and Nola started crawling Sat night. Go figure. She was really really slow at first, but now she's stepped it up a notch and gets into all sorts of things. So far, she immensely enjoys ripping magazines and shoving the pieces into her mouth. It reminds us of when Embry would shove sand in her mouth at the beach so fast we couldn't keep up with her little fists of fury! I took some 9 month pics of Nola today, here are a few of them...


This last one is Nola on the left and Embry on the right in the same pose at about the same age.

Our night at the cabin on Mt. Lemmon was a lot of fun. We played lots of games (Qwitch, Ruckus, Nab-It, and Skipbo), enjoyed the weather, tried to go to 2 restaurants at the top of the mountain which didn't work out, and did a lot of cutting with the cricut. I had a nightmare where I was moaning out loud and luckily Anna woke up and in turn woke me up to save me from my dream. I also had a dream where Anna's cell phone was ringing, but her ring tone was Anna saying, 'Annaaaaa! Annaaaaaaa?!' L to R: Me, Sarah, Anna

Our Mercury Tracer won't start so we bought a new car, well new to us anyway. It's a 97 Honda Accord that Tony's friend at work was selling. We're still trying to figure out what we want to do with the non-functioning Tracer in our garage. I got the title switched over on the Honda today and I was so very tempted to get Tony a personalized license plate that said 'IBMer' but he didn't seem thrilled when I mentioned the idea to him. Also, we noticed that the floor in our hallway was wet on Sunday night. After calling the home warranty people, we had some plumbers come out and they discovered our AC unit in the garage was gushing water. Turns out there was about 1/2" of water all under our stairs, so now we have our baseboards and some drywall ripped out and a bunch of air movers and a huge dehumidifier in our living room/bathroom. Now we're waiting for the actual AC company to come out and fix the problem. They said they'd be here at 5pm or after and it's now 8:30pm and I've called the home warranty place twice and still haven't gotten an ETA from the AC people.

In other news, I'm doing much better, which I'm quite hesitant to say in case I jinx myself or something. Seriously though, my back is a LOT better since starting physical therapy at the spine center and I think the extra time it's had to heal has helped as well. My INR was in range when I was checked last week, so that means I get to wait 2 weeks between appointments. Oh, and another thing that made me feel oh so good was that CULVERS OPENED IN TUCSON! Unfortunately Tony wasn't able to join us for dinner there last night (opening day) because he had to be here when the guy was out setting up the fans for our wet floor, but I brought him back a butterburger and some cheese curds. I did get some pictures though...

I also performed a sneak attack on Embry while we were in the bath last week and I cut her hair. I was so tired of it looking all scraggly and thin, so I trimmed the top part that was longer than all the undergrowth. Now it lays, curls, and looks a lot better and thicker. :D

Healing?

It always kind of throws me off when a doctor uses the word 'healed'. I mean, they're not supposed to do that right? I feel like it's taboo in the scientific medical world where all things must have a logical explanation to chalk something up to healing, but that's what the new rheumatologist just said to me.

First of all, he called me himself, at 7:30pm no less to discuss the results of my follow-up hip xray. That's pretty awesome. He said that he looked it over and the bone infarcts in the femoral shaft were gone and furthermore, the deterioration (or avascular necrosis) of the femoral heads (my hip joints) was completely healed. I mean holy cow, I'm having a hard time not sitting here smiling like a dorkus all alone at my computer screen!

On top of this (which I'm so trying to not get my hopes up about) is the fact that he said the ANA -antinuclear antibody- test the hematologist did in March (which is the main test for Lupus) came back negative. He said it could mean a number of things but the main thing he referred to was the fact that labs have recently switched to a much cheaper and not nearly as reliable method to test for ANA which gives false negatives for about 10% of patients. Ever since being diagnosed in 2003, my ANA has consistently been positive up until this test in March, so he's going back to look at my old lab reports. You can imagine that immediately my mind starts thinking 'oh gosh, what if it's gone? What if I'm all better? What if my life can be normal again?' Great and now I'm getting all emotional about it...lame! So, like I said, I'm trying not to get my hopes up, but what if...???

On the not so great side he said that once you have compression fractures they don't really go away ever...which is not what the neurosurgeon said, so I'm a little confused. And he said my level of vitamin D is good at 36 which I'm about to look up what exactly '36' means. He'll also continue to be my rheumatologist so I'll see him every 6 months for check ups, woohoo!

New Teeth, Holiday, and Physical Therapy

Nola's top two front teeth finally broke through in the past week. First it was her left, and then her right came through a few days later. We thought she had a runny nose/fever from teething, then it turned into a cold, then it got slightly better, then she had a fever of 102.5 and kept waking up at night crying. So I took her to the dr the next day and voila, she has an ear infection in her left ear. We started her on amoxicillan that night and so far she seems to be getting slightly better. At least no more waking up in the middle of the night crying, so that helps everyone out! * Edit * I forgot to add that she says 'mama' all the time now! It's so great, it's mostly when she's frustrated, but I totally eat it up and respond with a lot of, 'yes darling?' and 'mama's here!' Also, she was weighed at the dr and she's 19lbs 4oz at a little over 8 months old. Mmmm, I love her!

We had a lovely 4th of July except we kinda missed the big fireworks. There was a super monsoon that started around 4pm which happened to be when we were supposed to be over at our friend Herb's house for some festivities. We waited out the bad part of the storm (ie horizontal rain) and then trekked out for the party. It was pretty low key which was nice and the kiddos had a great time playing together while the adults got to play a few games. Tony managed a huge come from behind victory in Farkle and then us stragglers (me, Tony, and Herb) played a game of Qwirkle. It was really fun and I think I might have to buy it. ;) Of course, I lost as usual. So since I didn't want to end the game early, we left around 9:20 while the fireworks which I thought started at 9:15 had actually started at 9pm. Basically we saw them while we were driving trying to find a good spot to park and then right when we found one (at the eastside PCC campus) they were doing the grand finale. :/ We came home to set a few off in the backyard, but Embry was not too pleased when Tony handed her a lit sparkler and then did a nice freak out when he set off a firework fountain by the pool. That was the end to our fireworks for the night and we called it quits and went to bed.
I had my first Physical Therapy appt for my back/hips. It was basically just an evaluation and he said we're gonna work on strengthening my core muscles. I'll be going in twice a week for 4 weeks, which is good, but kinda difficult to get someone to watch the kiddos that often especially when my sis and her family are moving down here soon. Oh that reminds me, I got a call from the rheumatology office saying that my levels of vitamin D are normal. I guess that means I just keep taking the same Calcium+D that I've been taking since 2003, but that doesn't really make sense to me since if it hasn't worked very well so far then why not switch it up? Anyhow, I'll wait to get the hip xray done and see the results of that before I get all huffy about anything.

New Rheumatologist

The guy's name is Michael Mericic and he's supposed to be a rheumatologist who specializes in diseases of the bone in rheumatology...he even had a lovely book displayed in his exam room which he wrote. Overall I liked him. He's nice and he seems to know what he's talking about. He actually kinda reminds me of the hematologist, which is a good thing. Here's a breakdown of what he said:

• There doesn't seem to be any clear reason why my bones aren't as strong as normal. He asked about my past steroid use and besides being the hospital I've never taken more than 20 mg at a time for about 3 weeks at a time...so that would not cause it. Also, the steroids used in the hospital wouldn't show any damage for years to come, if at all.
  
• The CT of my hips shows white (bone is supposed to be gray) on both femoral heads and about a 4 inch section at the top of both femurs. That could either mean there's fluid in the bone, the bone is dead, or it was damaged at that point but has repaired itself.
• The CT of my hips (which was done prior to being bucked off the horse) also showed that my L4 vertebrae had a compression fracture. Weird seeing as the scans of my entire spine while I was in the hospital in Dec were completely normal except for a vertebrae in my neck. So what happened between Dec and April to my back?
  
• He ordered blood work to see how my body is absorbing vitamin D and a repeat hip xray.
  
• They don't give bone medications (like fosomax or boniva etc) to women who are pre-menopausal. I didn't catch why, but seemed like some hormonal thing.
• He didn't want to check my estrogen levels (even though I mentioned it about 3 times) because it fluctuates throughout the month and since my body doesn't show any signs of a hormonal imbalance, there's no reason to think my estrogen level isn't normal.
  
• He also does not like Benlysta. Or rather says there's no reason to like it yet. Basically, he said the studies showed that most of the time there is no or minimal improvement and since they don't know the long term effects, it wouldn't be worth it to risk taking it. Also he said it's about $35,000/year.
  
• He doesn't like the idea of kyphoplasty. Basically that was because the blind studies showed the same improvement with the procedure and the sham procedure. That just goes to show how much power your mind has over your body.
  
• He'll let me know about the blood work and xray and figure out what step to take next.